Title: Rex: A Mother, Her Autistic Child, and the Music That Transformed Their Lives
Author: Cathleen Lewis
Publisher: Thomas Nelson
Publishing date: 2008
Imagine yourself a young woman in her late-20's to early-30's, a newlywed and expecting your first child. It is an easy pregnancy with no hint of any problems. Life is good until, three weeks prior to term, the telephone rings. The doctor you saw that morning tells you the latest ultrasound shows a cyst on your baby's brain. Surgery will be necessary soon after your child is born. But this is only the beginning of challenges for which you are utterly unprepared.
This was Cathleen Lewis's experience. Surgery took place eight weeks after Rex was born. With the cyst presumably resolved, Lewis was unprepared for what lay ahead. The next few years offered a seemingly endless parade of new medical terms for diagnoses and conditions she had never heard of and must learn to live with, with Rex. But not all was dark.
Rex received a music keyboard, a Godsend, on his second birthday. Music and rhythm proved to be highly effective calming agents for his autistic behaviors and emotional swings. Far more than that, however, Rex quickly became "king" over the keyboard. Rex is a musical savant. But it seemed to me that his musical brain also allowed him to develop physically, cognitively and socially to defy many of the dire predictions made in his first three years.
In the book, Lewis takes the reader through all the stages of learning, setbacks, triumphs and disappointments for herself and for Rex. Along the way, she realizes that, at her son's core, he knows pure joy. In the words of one of his first piano teachers, Rex seemed to embody "a touch of the divine."
I intended to write this review when I finished my first reading, but the story of how Rex progressed so captivated me that one reading of the book was insufficient. Even after my second reading, I struggle to stick to a review, rather than unfolding the storyline. I believe that struggle testifies to the power of the story.
I highly recommend this book, but with a caveat or two: Rex's story may seem to offer hope for parents with an autistic or brain-damaged child, but for most, it is a hope that will never be fulfilled. On the other hand, parents with a challenged child may be encouraged to stretch themselves and their child beyond grim prognoses. Read Rex... for what it is: the story of how God used an extraordinary gift of music to lift Rex and his mother into a life of blessings, for themselves and for others.